Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 09-25-06. (Also see Pulmonary Hypertension)
Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 09-25-06. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )
Colombiana Support Group Nuestra proxima reunion se ralizara el Sabado 30 de Septiembre de 2006 a las 10:00 A.M. en el edificio World Trade Center, calle 100 8 A - 55, Bogota, D.C.. Posted 09-20-06.
Patty Sralla: ISN Insider Newsletter Manager. In 2003-2004, I served as ISN Newsletter Coordinator. I am delighted to return now as ISN Insider Newsletter Manager. Posted 09-13-06.
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See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: