September 2007 ISN News

Autoimmune Disease? Get Paid for Your Antibodies!

Access Biologicals' Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Posted 09-25-07. (Also see Antibodies)

Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 09-25-07. (Also see Pulmonary Hypertension)

NIH: Now Enrolling for Family/Twin Study

Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 09-25-07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )

Albert Herrmann is Tackling Scleroderma Now!

The International Scleroderma Network thanks Albert Herrmann for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 09-25-07. (Also see Join or Donate and ISN Donors)

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks Adam Mackler and Family for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, "the strongest woman we have ever known", who passed away on 6-29-03. Posted 09-25-07. (Also see Donate in Memory of Maxine Gail Mackler and ISN Donations In Loving Memory)

Raising Scleroderma Awareness in September 2007!

The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 09-25-07. (Also see ISN Secure Shops)

Amy Clark
Jason Ford
Debra Gucciardo
Elizabeth Hannig
Jacquelyn Noll
Jordana Novotny
Marco Villegas

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 09-04-07. (Also see ISN Donors)

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.