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Scleroderma ISN/Website |
September 2007 ISN News
Autoimmune Disease? Get Paid for Your Antibodies!
Access Biologicals' Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Posted 09-25-07. (Also see Antibodies)
Pulmonary Hypertension Registry of Scleroderma by SCTC
Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 09-25-07. (Also see Pulmonary Hypertension)
NIH: Now Enrolling for Family/Twin Study
Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 09-25-07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )
Albert Herrmann is Tackling Scleroderma Now!
The International Scleroderma Network thanks Albert Herrmann for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 09-25-07. (Also see Join or Donate and ISN Donors)
In Loving Memory of Maxine Gail Mackler
The International Scleroderma Network thanks Adam Mackler and Family for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, "the strongest woman we have ever known", who passed away on 6-29-03. Posted 09-25-07. (Also see Donate in Memory of Maxine Gail Mackler and ISN Donations In Loving Memory)
Raising Scleroderma Awareness in September 2007!
The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 09-25-07. (Also see ISN Secure Shops)
Amy Clark
Jason Ford
Debra Gucciardo
Elizabeth Hannig
Jacquelyn Noll
Jordana Novotny
Marco Villegas
Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 09-04-07. (Also see ISN Donors)
Many thanks to our recent donors, Custominkfundraising, Nancy Wyzinski, and Ruben Garcia! See ISN News for more donors. Click Here to Donate.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA