March 2009 ISN News

In Honor of Sharon I. Ehrlich

The nonprofit International Scleroderma Network thanks Sarah Jane Inglis for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses in honor of Sharon I. Ehrlich. Posted 03/27/09.

ISN Thanks Loren Singleton for the Voices of Scleroderma Book Order!

Thanks to Loren Singleton for the Voices of Scleroderma book order! You too can cuddle up with our scleroderma heroes as we regale our courageous battle with "the disease that turns people to stone." Laugh with our inspiring whimsy, and clutch our steadfast warmth to your heart. Embrace the knowledge no matter what befalls you, we understand, and you are not alone. Posted 03/24/09.

ISN Thanks Patricia Lettieri for her Voices of Scleroderma Book Order!

Thanks to Patricia Lettieri for her Voices of Scleroderma book order! You too can cuddle up with our scleroderma heroes as we regale our courageous battle with "the disease that turns people to stone." Laugh with our inspiring whimsy, and clutch our steadfast warmth to your heart. Embrace the knowledge no matter what befalls you, we understand, and you are not alone. Posted 03/18/09.

Jeannie McClelland: ISN Sclero Forums Manager

Jeannie McClelland: ISN Sclero Forums Manager. Jeannie has been promoted from ISN Sclero Forums Support Specialist to ISN Sclero Forums Manager. Jeannie, who has also known as J.J. Knitter, has been training for this position for the past month. In this new position, she will be responsible for the management, development and training for Sclero Forums. Posted 03-16-09. (Also see Sclero Forums)

Elizabeth Freese is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Elizabeth Freese for her support in helping to raise awareness of scleroderma through purchase of sclero awareness items. These purchases tackle research, support, education and awareness for scleroderma and related illnesses. Posted 03-13-09. (Also see Donate/Shop)

Beverly Russell is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Beverly Russell for her support in helping to raise awareness of scleroderma through purchase of sclero awareness items. These purchases tackle research, support, education and awareness for scleroderma and related illnesses. Posted 03-11-09. (Also see Donate/Shop)

Thanks to Sponsors of Earl Manns, Marathon Runner!

The nonprofit International Scleroderma Network thanks Silver Sponsor R. Hugh Fitzpatrick and Booster Sponsors Thomas and Gail Rhodes for their support for upcoming Earl Manns Marathons. These comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. Posted 03-09-09. (Also see Earl Manns)

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 03-09-09.

New ISN Page: Perioral Dermatitis

Perioral Dermatitis (Also called periorificial dermatitis) is a facial rash that tends to occur around the mouth and/or nose and occasionally, the eyes. Our new page covers its symptoms, possible causes, diagnosis and treatments. A recent case of Perioral Dermatitis is also covered.

Carrie Maddoux: ISN Sclero Forums Director

Carrie Maddoux: ISN Sclero Forums Director. Carrie has been promoted from ISN Sclero Forums Manager to ISN Sclero Forums Director. Carrie, also known as Jefa, has been an active member of the ISN Forums since its beginning in October 2006 and has been Manager since May 2007. In this new position, she will oversee the management, development and training for Sclero Forums, Chats, Blogs and Videos. Posted 03-04-09. (Also see Sclero Forums)

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: