October 2009 ISN News

In Loving Memory of Roger Ford (Birdman)

Thanks to Julie Ford for her donation in loving memory of Roger Ford (Birdman) and in honor of Jim White.

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Diane Scarola, Sheryl Lawson, McGraw Hill Companies, Janey Willis, Anonymous Donor, Melinda Pettit, Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/27/09.

Amanda Thorpe: ISN Email Support Specialist

Amanda Thorpe: ISN Email Support Specialist. In October 2009, I expanded my involvement by also volunteering as an ISN Email Support Specialist. In this role, I am responsible for answering most of the private emails submitted to the main site (in English). I'm lovin' the weird 'n' wacky world of sclero.org and I am particularly looking forward to helping people who are newly diagnosed. Posted 10-19-09.

Thanks to Janey Willis, Booster Sponsor of Earl Manns Marathons!

The nonprofit International Scleroderma Network thanks Janey Willis for her Booster Sponsorship for the Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Earl Manns, and Judy Tarro) Posted 10/19/09.

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: McGraw Hill Companies, Janey Willis, Anonymous Donor, Melinda Pettit, Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/19/09.

In Loving Memory of Roger Ford (Birdman)

Obituary: Roger Dean Ford. Survivors include his beloved wife and best friend, Julie Ford of Oak Island, NC. Memorials should be made to International Scleroderma Network, 7455 France Ave S # 266, Edina MN, 55435 or online at sclero.org. Arrangements are in the care of Heritage Funeral Home, Weddington Chapel. Online condolences may be left at www.heritagefuneral.net. Thank you to donors in his memory:

In Loving Memory of Lenea Lathrop

The International Scleroderma Network thanks Damany Phifer for her generous donation in memory of Lenea Lathrop. Posted 10/09/09.

Kahnawake Scleroderma Cluster

A Message to the Kahnawake Mohawk Nation Re:Scleroderma Epidemic at Kahnawake. It is clear that the people of Kahnawake have been exposed to solvents from local industry and from dump sites. It is clear that there is much Scleroderma at Kahnawake. The high rate of Scleroderma must be investigated at Kahnawake and perhaps, Akwesasne. John H.W. Hummell, 10/05/09. (Also see Causes of Scleroderma: Clusters and Causes of Scleroderma; Solvents, and Kahnawake Scleroderma Support Group)

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/02/09.

Running for SCLERO.ORG!

Running for SCLERO.ORG: Sponsor Earl Manns in Kansas City, Missouri Marathon, October 17, 2009! I'm running in honor of my daughter Mya, and in memory of Judy Tarro. (Also see Earl Manns, and Judy Tarro) Posted 10/01/09.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 10/01/09.

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