The nonprofit International Scleroderma Network thanks Patrick Popiolek for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 03/28/10.
The nonprofit International Scleroderma Network thanks Amanda Thorpe for taking on an additional volunteer role, as an ISN Sclero Forums Assistant Manager. Amanda is also an ISN Email Support Specialist. (Also see Amanda Thorpe , Sclero Forums, and How to Volunteer) Posted 03-19-10.
The nonprofit International Scleroderma Network thanks Dianne Bird for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of stories posted on the sclero.org web site. Posted 03/16/10.
The nonprofit International Scleroderma Network thanks Preston Burr for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 03/16/10.
The nonprofit International Scleroderma Network thanks Barbara Pugh for her recent order of awareness bracelets, to help tackle scleroderma research, support, education and awareness! Posted 03/02/10.
The nonprofit International Scleroderma Network thanks the United Way of Snohomish County for their recent donation to tackle scleroderma research, support, education and awareness! Posted 03/01/10.
S.1545 - Scleroderma Research and Awareness Act. A bill to expand the research and awareness activities of the National Institute of Arthritis and Musculoskeletal and Skin Diseases and the Centers for Disease Control and Prevention with respect to scleroderma, and for other purposes. Open Congress, 2010. Posted 03/01/10.
The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 03/01/10.
International Scleroderma Network thanks the following people for their generous donation in loving memory of Katrina Dollarhide: Fort Irwin Police Department, Dennis Dollarhide, Renate Knox, Mary Westfield, Danyelle Spurlock, Hilda McCain, Jacque White, Kenneth R. Smith, and Gene and Shelley Ensz. Read obituary. Posted 03/01/10.
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 03/01/10.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: