The nonprofit International Scleroderma Network thanks Herman Hicks for raising scleroderma awareness through the purchase of scleroderma awareness items! Scleroderma Posted 07/27/10.
Jeannie McClelland: ISN Director of Support Services. Jeannie has been promoted from ISN Sclero Forums Manager to ISN Director of Support Services. In this newly formed position she will be responsible for the development, training and management for all of ISN Support Services, including U.S. and worldwide support group and affiliate development, and for our online Sclero Forums, Chats, Blogs, and Videos. Posted 07-14-10. (Also see Jeannie McClelland and Sclero Forums)
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/06/10.
The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 07/04/10.
WWMR, a division of IntrinsiQ, is searching for patients diagnosed with PAH or their caregivers to serve on their research panel. Qualified participants will earn $50.00, plus the opportunity to earn more money by participating in future research studies. Participants must either be diagnosed with PAH, or be a caregiver for someone living with PAH. To learn more, and to see if you qualify, call WWMR toll free at 1-888-947-2339 and select option 4, or email PAH_Panel@wwmr.com. (Also see Pulmonary Hypertension Research Registries) Posted 07/03/10.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: