July 2010 ISN News

Herman Hicks is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Herman Hicks for raising scleroderma awareness through the purchase of scleroderma awareness items! Scleroderma Posted 07/27/10.

Jeannie McClelland: ISN Director of Support Services

Jeannie McClelland: ISN Director of Support Services. Jeannie has been promoted from ISN Sclero Forums Manager to ISN Director of Support Services. In this newly formed position she will be responsible for the development, training and management for all of ISN Support Services, including U.S. and worldwide support group and affiliate development, and for our online Sclero Forums, Chats, Blogs, and Videos. Posted 07-14-10. (Also see Jeannie McClelland and Sclero Forums)

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/06/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 07/04/10.

Pulmonary Hypertension Research Panel in U.S. — Qualified participants will earn $50.00, plus opportunity to earn more!

WWMR, a division of IntrinsiQ, is searching for patients diagnosed with PAH or their caregivers to serve on their research panel. Qualified participants will earn $50.00, plus the opportunity to earn more money by participating in future research studies. Participants must either be diagnosed with PAH, or be a caregiver for someone living with PAH. To learn more, and to see if you qualify, call WWMR toll free at 1-888-947-2339 and select option 4, or email [email protected]. (Also see Pulmonary Hypertension Research Registries) Posted 07/03/10.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: