November 2011 ISN News

ISN Medical Advisory Board Liaison, Dr. Jerry Molitor

Because Dr. Jerry Molitor is close at hand to the ISN headquarters in the Twin Cities, we asked him to serve as Liaison to the ISN Medical Advisory Board. Posted 12/01/2011.

Amanda Thorpe: ISN Video Presentations Manager

Amanda Thorpe has also become the ISN Video Presentations Manager. In this role that she created, she will be managing the overall production efforts for a series of educational videos on scleroderma and related topics, such as pulmonary hypertention. (Also see Amanda Thorpe and How to Volunteer) Posted 11/28/2011.

Thanks to United Way of Snohomish County

We heartily thank United Way of Snohomish County for their donation to tackle scleroderma. 11/22/2011.

Frances Hopkins is Reading the Voices of Scleroderma Book Series

The nonprofit International Scleroderma Network thanks Frances Hopkins for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org web site. Posted 11/21/2011.

JoMae White is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks JoMae White for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 11/18/2011.

Gerald Mackler, In Loving Memory of Maxine Gail Mackler

We thank Gerald Mackler for his donation to tackle scleroderma, in loving memory of Maxine Gail Mackler. Gerald, we deeply appreciate you r thoughtful, continual and generous support over the years, in loving memory of your beloved wife. It is a wonderful way to honor her memory, and we deeply appreciate it. 11/17/2011.

Happy Birthday, Jovita and Dale Bradeen!

Stephen and Ann Bradeen send birthday wishes to Jovita and Dale, along with her donation to tackle scleroderma. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. Celebrate your next special occasions with a gift to tackle scleroderma, and we'll send the card. 11/15/2011.

Featuring: Scleroderma Expert Sergio Jimenez, Jr., MD

Dr. Sergio A. Jimenez, Jr. is a rheumatologist who practices at Thomas Jefferson University in Philadelphia, PA. He has over 40 years of experience and treats juvenile and adult scleroderma (of all types) and other rare skin and fibrosing diseases. Posted 11/15/2011.

Featuring: University of Utah Systemic Sclerosis Program

University of Utah Systemic Sclerosis Program. This is a regional center of excellence, particularly for adults with systemic scleroderma lung involvement. ISN. Posted 11/14/2011.

Featuring: Cleveland Clinic Scleroderma Program

Cleveland Clinic Scleroderma Program. This regional scleroderma center of excellence is led by Dr. Soumya Chatterjee and handles adults with any type of scleroderma, either localized or systemic. ISN. Posted 11/11/2011.

Featuring: Scleroderma Center at UT Houston

Scleroderma Center at University of Texas - Houston. This is a world scleroderma center of excellence, led by Dr. Maureen Mayes, for adults with any type of scleroderma (either localized or systemic). ISN. 11/10/2011.

Featuring: The Scleroderma and Raynaud's Treatment Center in Lake Success, New York

The Scleroderma and Raynaud's Treatment Center, Led by Dr. Avram Goldberg, in New Hyde Park, New York. This center treats adults with any type of scleroderma (localized or systemic). ISN. Posted 11/09/2011.

Featuring: Dr. Kevin McKown, Scleroderma Expert

Dr. Kevin McKown, University of Wisconsin at Madison. This is a small scleroderma center in terms of size, and they only treat adults with systemic forms of scleroderma. ISN. Posted 11/08/2011.

Saiyed Rabbani, Thanks for Tackling Scleroderma Now!

We heartily thank Saiyed Rabbani for tackling scleroderma research. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. 11/07/2011.

Featuring: Center for Rheumatology in Saratoga Springs, NY

The Center for Rheumatology, Saratoga Springs (upstate New York near Albany). Led by Dr. Lee Shapiro, they treat both juveniles and adults, and accept both Medicare and Medicaid. ISN. Posted 11/07/2011.

Featuring: Scleroderma Center at the University of Minnesota

Scleroderma Center at the University of Minnesota Physicians. This regional scleroderma center is led by Dr. Jerry Molitor. They treat adults with any type of scleroderma (not juveniles). ISN. Posted 11/06/2011.

Featuring: Dr. Virginia Steen, GUMC in Washington, DC

Dr. Virginia Steen, Georgetown University Medical Center, Washington, D.C. This is a great center for scleroderma patients with pulmonary hypertension (PH/PAH). ISN. Posted 11/05/2011.

Featuring: Scleroderma Center at UCLA

Scleroderma Center at UCLA. This is a world scleroderma center of excellence, however they only treat adults who have systemic sclerosis (not juveniles or localized forms, such as morphea or linear.) ISN. 11/04/2011.

Marilyn Oxby, Thanks for Tackling Scleroderma Now!

We heartily thank Marilyn Oxby for her donation to tackle scleroderma. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. 12/08/10.

Featuring: Scleroderma Experts at Stanford University

Stanford University School of Medicine. This team consists of Dr. David Fiorentino, a dermatologist, and Dr. Lorinda Chung, a rheumatologist. ISN. Posted 11/03/2011.

ISN New Section: Scleroderma Experts

Scleroderma Experts. The ISN has begun a new section of the main web site, Scleroderma Centers, which will introduce and rate a scleroderma center every day for several months, and we will announce each new page in Sclero Forums. ISN. Posted 11/02/2011.

Sigma-Tau Pharmaceuticals (now Lediant) is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals (now Lediant) for their sponsorship support! Posted 11/15/2011.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 11/06/2011.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 11/04/2011.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 11/02/2011.

Welcome to Judy Trewartha: ISN Sclero Forums Support Specialist

Judy Trewartha: ISN Sclero Forums Support Specialist. Being a Support Specialist for ISN will be a very fulfilling role for me as it will keep me in touch with other lovely people, and it is something I can do no matter how I feel on a particular day. Posted 11/01/2011.

Sigma-Tau Pharmaceuticals (now Lediant) is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals (now Lediant) (now Lediant) for their sponsorship support! Posted 10/27/2011.

Rose Marie Tartaglia is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Rose Marie Tartaglia for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 10/26/2011.

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