July 2012 ISN News

Our Thanks to Evie Williams!

The International Scleroderma Network thanks Evelyn Williams for her generous donation to tackle scleroderma research, support, education and awareness! Posted 07/22/12.

Jeff Swope is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Jeff Swope for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 07/21/12.

ISN Video: Cyberchondria by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Cyberchondria. Cyberchondria is hypchondria for the Internet age. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 07/20/12.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 07/19/12.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous donation to tackle scleroderma research, support, education and awareness! Posted 07/18/12.

Sigma-Tau Pharmaceuticals (now Lediant) is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals (now Lediant) for their sponsorship support! Posted 07/16/12.

ISN Video: Telangiectasia and Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Telangiectasia in Scleroderma. Telangiectasia are dilated superficial blood vessels. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 07/15/12.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 07/14/12.

Featuring: Scleroderma Experts at the University Hospital Zurich

Scleroderma Experts at the University Hospital Zurich. These experts diagnose and treat systemic sclerosis in adults. (Also see ISN Dr. Oliver Distler) Posted 07/13/12.

Thanks to Google Matching Gifts

The International Scleroderma Network thanks Google Matching Gifts for their comprehensive donation to tackle scleroderma and pulmonary hypertension with research, support, education and awareness. Posted 07/12/12.

W. A. Gaskins is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks W.A. Gaskins for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 07/11/12.

ISN Video: Sexuality and Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Sexuality and Scleroderma. Scleroderma can affect every aspect of sexuality, for both men and women. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 07/10/12.

Featuring: Scleroderma Clinic at UCSF

University of California, San Francisco Scleroderma Clinic. This team is led by Dr. Tamiko Katsumoto. They treat all types of scleroderma, both localized and systemic, in adults. ISN. Posted 07/09/12.

ISN Video: Pain Management in Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Pain Management in Scleroderma. Living with a chronic illness is nobody's choice but there are things we can do to make living with it easier! (Also see Scleroderma Videos, and Amanda Thorpe). Posted 07/07/12.

New Story: Kristi U, Systemic Scleroderma

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day… Posted 07/06/12.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 07/06/12.

Oh my goodness, what did Janet Paulmenn do?

The International Scleroderma Network thanks Janet Paulmenn for her comprehensive donation to tackle scleroderma and pulmonary hypertension with research, support, education and awareness. Posted 07/05/12.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/02/12.

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.