April 2014 ISN News

Car Donation In Loving Memory of Peter Lineen

Thanks to Maureen Lineen for donating a car in loving memory of her father, Peter Lineen. The ISN accepts donations of any motorized vehicle (working or not) through our ISN CARS program at donatingiseasy.org. Posted 04/23/2014.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 04/21/2014.

Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.

Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you may be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 04/17/2014.

Sara P: CREST Syndrome Story Update

Sara P: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well… Posted 04/15/2014.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 04/14/2014.

In Loving Memory of Eugene (Gene) Ensz

Thanks to the following people for their donation in loving memory of Gene Ensz, who enthusiastically served as Co-Founder and Vice President of the nonprofit International Scleroderma Network since our inception in 2002: Amanda Thorpe, Shelley Ensz, Janet Paulmenn, and Margaret Roof. Posted 04/11/2014. (Also see Gene Ensz)

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 04/09/2014. (Also see Current Clinical Trials and Scleroderma Experts)

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 04/06/2014.

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 04/04/2014.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 04/02/2014.

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.