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Scleroderma ISN/Website |
July 2014 ISN News
Angelina Giobbi is Reading the Voices of Scleroderma Books!
The nonprofit International Scleroderma Network thanks Angelina Giobbi for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of personal stories posted on the sclero.org web site, as well as articles by world scleroderma experts. Posted 07/29/2014.
Updated: Scleroderma FAQ by Ed Harris
The recently updated Scleroderma FAQ is an educational website that covers scleroderma diagnosis and treatment. There are also supplemental technical articles on ANA and antibody testing and scleroderma-related blood hyperviscosity research and treatments. (Also see Scleroderma Webmaster's Association) Posted 07/24/2014.
Genentech is Tackling Scleroderma Now!
The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 07/21/2014.
Lorie Dearinger is Raising Scleroderma Awareness!
The nonprofit International Scleroderma Network thanks Lorie Dearinger for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/20/2014.
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 07/14/2014.
Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 07/09/2014. (Also see Current Clinical Trials and Scleroderma Experts)
Did you know you can help raise scleroderma awareness?
Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/07/2014.
United Therapeutics is Tackling Scleroderma Now!
The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 07/06/2014.
Donald Farmer is Reading the Voices of Scleroderma Books!
The nonprofit International Scleroderma Network thanks Donald Farmer for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of personal stories posted on the sclero.org web site, as well as articles by world scleroderma experts. Posted 07/05/2014.
Paul Phifer is Tackling Scleroderma Now!
The International Scleroderma Network thanks Paul Phifer for tackling scleroderma research, support, education and awareness! Posted 07/04/2014.
Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/02/2014.
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA
The most important thing in the world to know about scleroderma is sclero.org!
