October 2014 ISN News

In Loving Memory of Robert Baumgardner

The International Scleroderma Network thanks Rhonda Black for her generous donation to tackle scleroderma research in memory of Robert Baumgardner. Posted 10/26/2014.

In Honor of Lenora Lawhorn

The International Scleroderma Network thanks Rhonda Black for her generous donation to tackle scleroderma research in honor of Lenora Lawhorn. Posted 10/25/2014.

Charlie Jones is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Charlie Jones for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/23/2014.

In Loving Memory of Beth Ann Fortwendel

The International Scleroderma Network thanks Dr. David O. Wood & Faculty, from the Department of Microbiology and Immunology at the University of South Alabama College of Medicine for their generous donation to tackle scleroderma research in memory of Beth Ann Fortwendel. Posted 10/22/2014.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 10/21/2014.

In Loving Memory of Joshua Narins

The International Scleroderma Network thanks Sharon Rapone for her generous donation to tackle scleroderma research in loving memory of her son, Joshua Narins. Posted 10/20/2014.

ISN Video: Overview of Dental Involvement in Scleroderma

Amanda Thorpe has produced another video, entitled Overview of Dental Involvement in Systemic Sclerosis. Did you know that Systemic scleroderma sometimes affects the mouth, teeth, jaw, and gums? It can cause the mouth to shrink, tooth loss, mouth sores, dry mouth, and jaw pain from TMJ. (Also see Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 10/19/2014.

ISN Video: Treatments for Pulmonary Hypertension by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Treatments for Pulmonary Hypertension in Systemic Sclerosis (Scleroderma). Did you know that Pulmonary hypertension secondary to systemic scleroderma can have a poor outcome, if untreated? (Also see Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 10/16/2014.

James Manry is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks James Manry for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/15/2014.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 10/14/2014.

ISN New Topic: Extrapulmonary Tuberculosis by Jo Frowde

Extrapulmonary Tuberculosis. Tuberculosis is not an autoimmune disease, however when it spreads outside the lungs, it can affect any part of the body and thus it can imitate many autoimmune diseases, especially other systemic diseases such as scleroderma and lupus. (Also see Jo Frowde and How to Volunteer) Posted 10/13/2014.

ISN Video: Diagnosis of Pulmonary Hypertension by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Diagnosis of Pulmonary Hypertension in Systemic Sclerosis (Scleroderma). Did you know that diagnosing pulmonary hypertension in systemic scleroderma, especially in the early stages, can be difficult? (Also see Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 10/12/2014.

Our Thanks to United Way of Central New Mexico!

The International Scleroderma Network thanks United Way of Central New Mexico for their generous donation to tackle scleroderma research, support, education and awareness! Posted 10/11/2014.

Judy Landsdorf is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Judy Landsdorf for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/10/2014.

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 10/09/2014. (Also see Current Clinical Trials and Scleroderma Experts)

Ashley Stewart is Tackling Scleroderma!

The International Scleroderma Network thanks Ashley Stewart for her generous donation to tackle scleroderma research. Posted 10/08/2014.

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/07/2014.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 10/06/2014.

Gregory Summerton is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Gregory Summerton for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/05/2014.

Scleroderma? Shop at AmazonSmile!

Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 10/04/2014.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 10/02/2014.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: