November 2014 ISN News

In Loving Memory of Yvonne Monk

The International Scleroderma Network thanks Deneese Betz, Jamie Boyd-Hamilton, Ilene Frost, Janice Gross, Betty Lauer, Barbara L. Miller, Timothy Miller, Kay E. Mosher, Terri Neuenfeldt, Lillian Novak, Susan Ontiveros, Leona Osborne, Connie Schafer, Alaine Shock, Rhonda Strong, and Karen Zinck for their generous donation to tackle scleroderma research in loving memory of Yvonne Monk. Posted 11/27/2014.

In Loving Memory of Joshua Narins

The International Scleroderma Network thanks Cryn Brissman, Yang Cao, Marilyn Oskin, and Sharon Rapone for their generous donation to tackle scleroderma research in loving memory of Joshua Narins. Posted 11/26/2014.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 11/21/2014.

In Loving Memory of Nolan LaTourelle

The International Scleroderma Network thanks Shelley Ensz for her generous donation to tackle scleroderma research in loving memory of her son, Nolan LaTourelle, who passed away suddenly on November 10th. Nolan was a co-founder of the ISN and is dearly missed by all. Posted 11/16/2014.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 11/14/2014.

Our Thanks to United Way of Central New Mexico!

The International Scleroderma Network thanks United Way of Central New Mexico for their generous donation to tackle scleroderma research, support, education and awareness! Posted 11/11/2014.

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 11/09/2014. (Also see Current Clinical Trials and Scleroderma Experts)

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 11/07/2014.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 11/06/2014.

Scleroderma? Shop at AmazonSmile!

Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 11/04/2014.

New Topic: Taste and Smell Impairments in Systemic Sclerosis by Jo Frowde

Taste and Smell Impairments. Taste and smell disorders can be caused by many things. Surprisingly, losing a sense of smell is a strong indication of poor health, so it warrants a trip to the doctor to identify the underlying cause. ISN. Posted 11/03/2014.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 11/02/2014.

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

The most important thing in the world to know about scleroderma is sclero.org!