The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 05/21/2015.
The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 05/14/2015.
Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 05/09/2015. (Also see Current Clinical Trials and Scleroderma Experts)
Kathy Baker: CREST, Systemic Sclerosis. This is second slideshow added to Kathy's story, with photos of gangrene and amputation as a complication of systemic sclerosis (scleroderma). Posted 05/08/2015.
Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 05/07/2015.
The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 05/06/2015.
Sara P: CREST Syndrome (Update) I was just diagnosed last week with early stage pulmonary arterial hypertension… Posted 05/04/2015.
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 05/04/2015.
Amanda Thorpe has produced another video, entitled Overview of Sjogren's Syndrome in Systemic Scleroderma. Did you know the hallmark symptoms of Sjögren's include dry eyes, dry mouth, dry vagina, fatigue, and it can affect the skin, lungs, heart, kidneys, muscles, and central nervous system. (Also see Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 05/03/2015.
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 05/02/2015.
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See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: