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Scleroderma ISN/Website |
August 2015 ISN News
In Loving Memory of Angelia Wilson
Our condolences to the family and friends of Angelia Wilson, who passed away from scleroderma on August 26, 2015. Donations in her memory may be made to the nonprofit Internatonal Scleroderma Network (sclero.org) with this PayPal button. We will send a sympathy card to the family for each donation. Posted 08/28/2015.
(Update) Sherri M: CREST Syndrome
(Update) Sherri M: CREST Syndrome. I have been put on Opsumit for the Pulmonary Hypertension. I have been on it for ten weeks now. I started to notice a tiny difference at around week 7; I felt just a little less short of breath… Posted 08/24/2015.
Genentech is Tackling Scleroderma Now!
The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 08/21/2015.
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 08/14/2015.
Scleroderma Education Project “Guide for New and Future Patients” is now available in Spanish.
The Scleroderma Education Project SclerodermaInfo.org “Guide for New and Future Patients” is now available in Spanish. This is the first of three documents in the Patient Education series that will eventually be translated into Spanish. (Also see Scleroderma Webmaster's Association) Posted 08/14/2015.
Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 08/09/2015.
Did you know you can help raise scleroderma awareness?
Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 08/07/2015.
United Therapeutics is Tackling Scleroderma Now!
The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 08/06/2015.
Scleroderma? Shop at AmazonSmile!
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 08/04/2015.
Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 08/02/2015.
See ISN News for recent donors, including donations in memory of Peter J. Devlin. Click Here to Donate.
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SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA