Scleroderma Hotline and Email Support Specialists are eager to help people affected by scleroderma and related illnesses, such as pulmonary hypertension. Simply email [email protected] or call our Hotline at 1-800-564-7099. Ask for your free information packet! Posted 09/26/2016.
(Update) Sara P: CREST Syndrome It's been a year or so since I've been put on the PAH drugs. I am doing well. I am tolerating them, have had no side effects from them... Posted 09/16/2016.
In loving memory of Janet Paulmenn, a donation has been made by Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Kenneth and Christine LaFreniere, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, Deborah Simon; Carol, Kristin and Kevin Singleton; Gary and Michelle Spaeth, and Bruce and Elizabeth Winter to the nonprofit International Scleroderma Network. (Also see ISN: Janet Paulmenn and Sclero Shop/Donate) Reposted 02/15/2017.
Sclero Forums offers stellar online support, with forums, chats, and blogs for people who are interested in scleroderma. It is a free service of SCLERO.ORG, by the nonprofit International Scleroderma Network. Posted 09/23/2016.
The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 09/21/2016.
The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 09/14/2016.
Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 09/09/2016.
Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 09/07/2016.
The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 09/06/2016.
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 09/04/2016.
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 09/02/2016.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.