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Scleroderma ISN/Website |
October 2017 ISN News
Sclero Hotline and Email Support Services
Scleroderma Hotline and Email Support Specialists are eager to help people affected by scleroderma and related illnesses, such as pulmonary hypertension. Simply email [email protected] or call our Hotline at 1-800-564-7099. Ask for your free information packet. Posted 10/26/2017.
Online Scleroderma Support for You and Your Family!
Sclero Forums offers stellar online support, with forums, chats, and blogs for people who are interested in scleroderma. It is a free service of SCLERO.ORG, by the nonprofit International Scleroderma Network. Posted 10/23/2017.
Genentech is Tackling Scleroderma Now!
The International Scleroderma Network thanks Genentech for their sponsorship support. Posted 10/21/2017.
New Topic: Endocannabinoid System by Jo Frowde
Endocannabinoid System (ECS) The Endocannabinoid System is the name for a series of endogenous cell receptors that respond to certain kinds of agonists, located in the mammalian brain and throughout the central and peripheral nervous systems. Posted 10/17/2017.
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 10/14/2017
New Topic: Therapeutic Plasma Exchange by Jo Frowde, ISN Guide to Therapeutic Plasma Exchange
Therapeutic Plasma Exchange (TPE) by Jo Frowde, ISN Guide to Therapeutic Plasma Exchange Therapeutic Plasma Exchange (TPE) is an extracorporeal therapy treatment, which has been used successfully for limited scleroderma. Posted 10/11/2017. (Also see How to Volunteer)
Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 10/09/2017.
Did you know you can help raise scleroderma awareness?
Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 10/07/2017.
United Therapeutics is Tackling Scleroderma Now!
The International Scleroderma Network thanks United Therapeutics for their sponsorship support. Posted 10/06/2017.
Scleroderma? Shop at AmazonSmile!
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network. Posted 10/04/2017.
Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support. Posted 10/02/2017.
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA
The most important thing in the world to know about scleroderma is sclero.org!
