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ISN News Manager: Jo Frowde
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October 2017 ISN News

Sclero Hotline and Email Support Services

Call our sclero hotlineScleroderma Hotline and Email Support Specialists are eager to help people affected by scleroderma and related illnesses, such as pulmonary hypertension. Simply email [email protected] or call our Hotline at 1-800-564-7099. Ask for your free information packet. Posted 10/26/2017.

Juliet Youkhana is Tackling Scleroderma Now!

The International Scleroderma Network thanks Juliet Youkhana for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 10/24/2017. (Also see ISN: Comprehensive Donation)

Online Scleroderma Support for You and Your Family!

Sclero Forums offers stellar online support, with forums, chats, and blogs for people who are interested in scleroderma. It is a free service of SCLERO.ORG, by the nonprofit International Scleroderma Network. Posted 10/23/2017.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support. Posted 10/21/2017.

New Topic: Endocannabinoid System by Jo Frowde

Endocannabinoid System (ECS) The Endocannabinoid System is the name for a series of endogenous cell receptors that respond to certain kinds of agonists, located in the mammalian brain and throughout the central and peripheral nervous systems. Posted 10/17/2017.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 10/14/2017

New Topic: Therapeutic Plasma Exchange by Jo Frowde, ISN Guide to Therapeutic Plasma Exchange

Therapeutic Plasma Exchange (TPE) by Jo Frowde, ISN Guide to Therapeutic Plasma Exchange Therapeutic Plasma Exchange (TPE) is an extracorporeal therapy treatment, which has been used successfully for limited scleroderma. Posted 10/11/2017. (Also see How to Volunteer)

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Medical Symbol Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 10/09/2017.

Did you know you can help raise scleroderma awareness?

Scleroderma Awareness Bracelet Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 10/07/2017.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support. Posted 10/06/2017.

Scleroderma? Shop at AmazonSmile!

Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network. Posted 10/04/2017.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support. Posted 10/02/2017.

Go to ISN News: September 2017
 

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)