Chronic Fatigue Syndrome and Fibromyalgia Stories
Alegria: Fibromyalgia (Israel) My hands, legs and shoulders hurt in a very distinctive manner; my fingers are paralyzed with pain, and sometimes I get strong headaches…
(Español/Spanish) Alegria: Fibromialgia Me duelen las manos, las piernas, los hombros, de maner extraña; los dedos se me paralizan del dolor, y en ocasiones me duele la cabeza…
Amy B: Limited Scleroderma with CREST I am a full time pharmacist in a pediatric hospital. In February or March of this year, I began to be very intolerable of the cold…
Ang: Morphea and Fibromyalgia I was diagnosed with morphea in February 2002, but had this for a year prior to that without knowing exactly what the diagnosis was…
Annette G: MCTD, Systemic Scleroderma, Chronic Kidney Disease, CFS, Fibromyalgia, Trigeminal Neuralgia, TMJ People think that because I am a nurse I have all the answers. Well guess what? I don't…
Becky: Morphea and Fibromyalgia The muscle in my forearm has already atrophied, and it has only been four weeks…
Beverly: CREST Scleroderma I was overtired and needed naps in the afternoon, pain was slowly getting the better of me and I finally went to the doctor…
Brenda: Limited Scleroderma, CREST, Raynaud's I was sick for five or six years, telling doctors how much pain I was in…
Brenda M: Primary Biliary Cirrhosis (PBC), Fibromyalgia, Pulmonary Fibrosis, and Sjogren's Syndrome In 1965, when I was twenty-six, I went to work for a firm of electro-platers, which was mainly aircraft work…
Buggzy: Autoimmune Hepatitis, Fibromyalgia, Undiagnosed I am really desperate to get some answers or to hear from others in the same boat as me…
Carla: CREST Syndrome and Fibromyalgia When I read some of these stories, they scare the devil out of me. Is this really that bad?…
Charmaine J: Lichen Sclerosus Atrophy (LSA) My skin is very hard and has no elasticity so sitting, laying, or riding in a car are uncomfortable…
Chris Beck: In Memory of My Mother, Veta Breit Can someone help me? My hands hurt and get cramped sometimes when they get cold…
CJ: Fibromyalgia, UCTD, and Systemic Sclerosis I have been going to doctors for over five years now and have just recently been diagnosed…
Daisy: Sjogren's, Spondyloarthritis and Fibromyalgia Everything started two years ago, with a pain in my knee for which I got surgery…
(Italiano) Daisy: Sjogren's, Spondiloartrite and Fibromyalgia Poi il dolore alle anche, alla schiena e adesso ho dolori diffusi da pertutto…
Danie: CREST Scleroderma My parents always thought of it as an excuse to miss school. It all started with my hands…
Debbie M: CREST Scleroderma, Systemic Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, and Fibromyalgia When we are given the CREST diagnosis, does that mean that we definitely will have the tight skin eventually?
Dian H: Diffuse Scleroderma Having to take disability from work is the hardest thing I have ever done. Working at least kept my mind on other things besides the pain…
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998…
Donna H: CREST, Autoimmune Hepatitis, Fibromyalgia I also have degenerative disc disease, osteoarthritis, anxiety/depression/panic disorder, irritable bowel…
Janet: Mixed Connective Tissue Disease I have just been diagnosed with Mixed Connective Tissue Disease (MCTD), lung fibrosis, Raynaud's and sicca (dryness) symptoms…
Janice E: CREST/Fibromyalgia At some point I came to the realization that what I was feeling just could not be normal. By this time my hands were swelling…
Jewell: Diffuse Progressive Systemic Sclerosis When I think back, I had been getting sick for a long time. I just did not know it…
Joan Elston: Systemic Scleroderma, Sjögren's, and Fibromyalgia I am 61 years of age and live with my husband Bryan in Durban South Africa…
Jody: Fibromyalgia/Difficult Diagnosis In Sudan, I was on IV for heat stroke and food poisoning. And in Thailand, at the end of March, it all came to a crashing halt…
Karen M.R.: Diffuse Scleroderma and Fibromyalgia I was so glad she was there, because I sort of went into shock when the doctor said she was going to start me on chemo treatments…
Kellie: Overlap Scleroderma and Mixed Connective Tissue Disease (MCTD) I am so relieved to read about so many people who have had the same experiences…
Krisha S: Multiple Autoimmune Condition I have multiple sclerosis (MS), fibromyalgia, and Stiff Person Syndrome…
Kym: Diffuse, CREST Scleroderma, Lupus and Fibromyalgia It all started with Raynaud's in my fingers and toes when I was about nineteen years old, in 1979…
Lee: Undifferentiated Connective Tissue Disease (UCTD) A Sloan-Kettering researcher said our problems were related to HLA-B27 inheritance…
Linda F: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma, and Osteomyelitis I need to tell you all the gory details so you can truly understand what a miracle it is that I am alive today…
Lisa P: Undifferentiated Connective Tissue Disease (UCTD) I have an appointment with a new rheumatologist on May tenth. Hopefully I will get some answers…
Lois: Fibromyalgia with Possible CREST When I read Carla's story it almost sounded like mine! When I was in tenth grade, Raynaud's started and a horrible kind of rash…
Loretta: Fibromyalgia My spinal doctor says it's Fibromyalgia, the family doctor says it's my back. I am so confused…
Mary T: CREST Scleroderma If my rheumatologist does not explain my problems to my satisfaction, I will be looking for another doctor…
Merrie: Mother of Daughter with Raynaud's and Fibromyalgia? They said it might mean something or not and referred her to a rheumatologist, but he just blew it off as nothing…
Missie R: Mixed Connective Tissue Disease I finally asked for an ANA test to check for lupus. My family doctor hesitated because my symptoms were all over the board…
Myrianisa: Daughter of a Severe Scleroderma Patient My mother was diagnosed with scleroderma six years ago. At the same time, she was also diagnosed with lupus, Raynaud's, MCTD, pulmonary fibrosis and fibromyalgia…
Nan: Mixed Connective Tissue Disease and Fibromyalgia Finally after several years of struggle, one wonderful doctor at OSU got gutsy and gave me the MCTD diagnosis…
Natasha Lubin: My Eyes Say It All When I was only eight years old, my hands were blue, red, white, purple, numb, stinging…
Papa V: Lupus, Antiphospholipid Syndrome, Myasthenia Gravis, and Scleroderma About thirty years passed, and then—BAM !—I got a heart blockage, stroke, liver biopsy due to elevated enzymes, skin rash, high blood pressure, very high ANA..
Queenie: Systemic Sclerosis with Pulmonary Fibrosis (Liverpool) It was only when my mother went onto the internet looking at illnesses that had all the symptoms that I was showing that we found Raynaud's and scleroderma…
Rebecca: CREST, Fibromyalgia, Sjogren's and Pulmonary Hypertension My finger has gangrene and the hand specialist says it needs to look like a mushroom before they will amputate…
Sandy J: CREST Scleroderma I have had an ileostomy for two years and a feeding peg for just over one year, and would appreciate comments from any person who also has one or both of these problems…
Sara P: CREST Syndrome In the winter of 1997, my fingers and toes started turning white and numb in response to the cold weather…
Shar: Lupus, Scleroderma, Sjögren's, and Fibromyalgia Was my battle with Hepatitis C worth it? Yes!
Sheila Z: Scleroderma I would like to first say that this site has been a great help for me to understand what is happening to my body and my life…
ry: Fibromyalgia and Hypothyroidism He said Fibromyalgia is just pain, and if I could not handle my job, I should quit…
Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption…
Tina Lech: Diffuse Scleroderma, Fibromyalgia, Pineal Cyst I was a very active, alive, mother of three…
Tracie S: CREST with Fibromyalgia I ache from head to toe, am cold all the time, feel like I am in a fog, in general I am just not up to par…
Yvonne Frasure: CREST and Fibromyalgia I no longer go to the doctor because I simply cannot afford it. I cannot get insurance so everything is out of pocket…
In Loving Memory of Lorraine Wempner, a donation to tackle scleroderma has been made by Paul Wempner. Posted 11/13/2019. (Also see: ISN News)
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