Quality of Life
Pediatric Lupus refers to any form of lupus that onsets during childhoood. It generally begins with vague symptoms like weakness, joint pain, weight loss, fatigue and/or rashes. After a few months, more serious symptoms may set in.
Differences in disease phenotype and severity in systemic lupus erythematosus (SLE) across age groups. Direct comparison of juvenile–onset SLE (JSLE) with adult–onset SLE suggest an aggressive phenotype of disease with a worse outcome in patients with JSLE and emphasizes the importance of careful follow–up in this population. PubMed, Lupus, 05/04/2016.
Serum–soluble CXCL16 in juvenile systemic lupus erythematosus (jSLE): a promising predictor of disease severity and lupus nephritis. Serum sCXCL16 might play a role in inflammatory pathogenesis of jSLE particularly in periods of disease activity. PubMed, Clin Rheumatol, 07/13/2018.
Systemic Lupus Erythematosus in Children and Teens. Lupus is a disease that is diagnosed by a combination of at least four physical symptoms and/or blood test abnormalities. American College of Rheumatology.
Common symptoms of juvenile onset systemic lupus erythematosus may include arthritis, rashes, blood disorders, mouth or nose sores, seizures, fever, fatigue, and heart, lung, or kidney problems.
Research May Help Clinicians Improve Quality of Life among Children with Lupus. Using the PROMIS questionnaire in children and adolescents with lupus allows clinicians to better design treatment plans for their patients, improve communication and overall management of disease and ultimately have a positive impact on a patient's quality of life. Lupus Foundation of America.
Many thanks to our recent donors, Jack and Elizabeth Lewis, Network for Good, Shirley Miller, Reata Pharmaceuticals, and United Way of Snohomish County! See ISN News for more donors. Click Here to Donate.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: