|Types of Scleroderma: All
Ages: Adults Only
Insurance: Medicare, Medicaid and most others
The scleroderma expert at this hospital is Dr. Flavia V. Castelion, whose clinical interests include scleroderma, connective tissue associated interstitial lung disease, Raynaud's phenomenon, rheumatoid arthritis and dermatomyositis. The hospital diagnose and treat adults with all types of scleroderma.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
55 Fruit Street
Boston MA, 02114-2696
Massachusetts General Hospital Massachusetts General's Rheumatology Unit provides cutting–edge treatment and transformative care to patients with rheumatic disease and autoimmune conditions. Massachusetts General Hospital.
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
Flavia V. Castelion, MD
Sara Schoenself, MD
This center treats all forms of scleroderma, such as localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. (Also see Types of Scleroderma)
This center only diagnose and treat adults.
Medicare, Medicaid and others taken. Please verify insurance coverage.
Massachusetts General Hospital is a member of the Scleroderma Clinical Trials Consortium (SCTC), which means that they participate in SCTC peer-reviewed international clinical trials for scleroderma.
12/30/2017: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. No changes. JEF
06/21/2017: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. Page information updated. Sara Schoenself, MD added. JEF
Massachusetts General Hospital. This center is led by Dr. Flavia V. Castelion and they treat adults with all types of scleroderma, both localized and systemic. ISN. Posted 05/14/2016.
04/23/2016: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator.
04/23/2016: Page published. JEF
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: