|Types of Scleroderma: Systemic
Ages: Adult Only
Insurance: Medicare, BMC Medicaid*
This center is led by Dr. Robert Simms, and it is recognized as an international leader for the diagnosis and treatment of adults who have systemic sclerosis. They provide patients with systemic sclerosis state–of–the–art patient care and the opportunity to participate in advanced therapeutic research which both improves patient quality of life and provides for a basis for understanding the pathogenesis of the disease.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
Boston University School Of Medicine
725 Albany St
Boston University School of Medicine Scleroderma Center. The Scleroderma (Systemic Sclerosis) Center at The Boston Medical Center (BUMC, or Boston University School of Medicine) is a collaboration of the Pulmonary and Rheumatology Departments. The Center is recognized Internationally as a leader in scleroderma, and provides for the diagnosis and treatment of patients with Systemic Sclerosis. BUMC.
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
Robert W. Simms, MD, Professor of Medicine and Acting Director of the Division of Rheumatology and the Scleroderma Center
Michael York, MD.
Martin Trojanowski MD
This center reports that they diagnose and treat systemic sclerosis (including diffuse and limited/CREST systemic scleroderma), but they do not treat juveniles or those with localized scleroderma (such as morphea, linear, or en coup). (Also see Difficult Diagnosis and Types of Scleroderma)
This center reports that they are only able to treat adult scleroderma patients (age 18 or over).
* This center accepts Medicare, and they have a BMC Medicaid plan. They accept other insurance plans, too. Please verify insurance coverage.
This center is a member of the Scleroderma Clinical Trials Consortium (SCTC), which means that they participate in SCTC peer-reviewed international clinical trials for scleroderma.
06/21/2017: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. Page information updated. Martin Trojanowski MD added. JEF
05/08/2016: Overview added. JEF
03/17/16: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. Page Updated. Appointment phone no. updated. New clinic address and Dr Michael York added. JEF
01/04/12: Page published.
United Way of Central New Mexico
United Way of Snohomish County
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: