|Types of Scleroderma Handled: All
Ages: Juveniles Only
This center is led by Dr. Kathryn Torok, who is a director of the Pediatric Scleroderma Clinic at the Children's Hospital, part of the University of Pittsburgh Medical Center Scleroderma Center. They deal with juvenile patients only and provide treatment for children with localized and systemic scleroderma. Dr. Torok has been involved in a multitude of research projects including serving as principle investigator and coordinator of the National Registry for Childhood Onset Scleroderma.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
Children's Hospital of Pittsburgh
Pediatric Scleroderma Clinic
4401 Penn Ave
Pittsburgh, PA 15224
Pediatric Scleroderma Clinic
412-692-5081 (option 1)
Monday – Friday 8am – 4pm
Children's Hospital of Pittsburgh The Division of Pediatric Rheumatology evaluates children with symptoms suggestive of an autoimmune/inflammatory disease or musculoskeletal pain and provide comprehensive care tailored to each child. Children's Hospital of Pittsburgh.
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
This center treats all forms of scleroderma, such as localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. (Also see Types of Scleroderma)
This center only diagnose and treat juveniles.
Most insurances, depending on situation. Ask for specific information. Please verify insurance coverage.
Dr. Kathryn Torok is involved in the Childhood Arthritis and Rheumatic Disease Research Alliance Network (CARRANet)
07/06/2018: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. No changes. SLE.
01/07/2018: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. No changes. JEF.
06/21/2017: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. No changes. SLE.
Children's Hospital of Pittsburgh. This center is led by Dr. Kathryn Torok and they deal with juvenile patients only and provide treatment for children with localized and systemic scleroderma. ISN. Posted 05/19/2016.
04/16/2016: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator.
04/16/2016: Page published. JEF
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