Emotional Adjustment and Scleroderma

Author: Janey Willis. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer.
Video: Introduction
Living with a Chronic Illness
Anxiety and Attitude
Coping with Scleroderma
Depression and Scleroderma
Fear of Progression
Marriage and Health
Needle Phobia
Pain Management
Quality of Life with Scleroderma
Sexuality and Scleroderma
Sleep Disorders and Scleroderma
Suicide Prevention

Video Introduction

Scleroderma Emotional Adjustment Video
Video: Emotional Adjustment in Scleroderma

Presented by Amanda Thorpe
*More Sclero Videos*

Living with a chronic illness is nobody's choice but there are things we can do to make living with it easier. Making lifestyle changes that reduce stress, limiting our exposure to unhealthy situations, and promoting laughter are good places to start.

Taking medications properly, staying close to family and friends, being aware of how we feel physically and emotionally can also help. For people with scleroderma or any chronic illness, depression is a natural reaction to diagnosis, the symptoms and the major changes in quality of life but as depression can make the physical problems of a disease worse it must be monitored and treated as necessary.

Scleroderma can also affect every aspect of sexuality for men and women so it's important to consider the emotional impact of this. Also be aware that poor sleep can trigger inflammation, worsen pain and lead to depression making it even more difficult to cope with the underlying chronic illness. (Also see Sclero Forums Online Support Group, Hosted Chats, Scleroderma Videos, and Amanda Thorpe)

Overview of Emotional Adjustment with Scleroderma

Causes of Scleroderma: Stress. Stress can cause hormonal and cellular changes in our bodies which can lead to a variety of medical problems. Chronic stress is thought to be a trigger for the development or exacerbation of autoimmune diseases. On the other hand, there might also be a positive role for stress in reducing inflammation in some circumstances. ISN.

Stress and Disease
Stress and Fertility
Stress and Inflammation
Reducing Stress

Living with a Chronic Illness

Living with a Chronic Illness usually requires several lifestyle changes that reduce stress, limit exposure to unhealthy situations, help you get some type of exercise, encourage eating healthy, and promote lots of laughter. ISN.

Anxiety, Attitude, and Scleroderma

Coping: Anxiety and Attitude. Anxiety is a symptom that needs to be addressed and minimized when one is dealing with a chronic illness such as scleroderma. ISN.

Overview of Anxiety
Scleroderma and Anxiety
- Anxiety: Personal Stories
- Anxiety: Sclero Forums Discussions
- Attitude Personal Stories

Coping with Scleroderma

Coping with Scleroderma. A healthy emotional adjustment is an important part of having a good quality of life (QOL). It is even more important when you have a chronic illness such as scleroderma. ISN.

Overview of Coping with Scleroderma
Coping with a Child's Chronic Illness
Coping Strategies
Support Group Stories
Evaluating State of Mind and QOL
Personal Stories
Personal Stories of Child with Scleroderma

Depression and Scleroderma

Depression is a serious sadness that may or may not have a reason. For people with scleroderma or another chronic illness, depression is a natural reaction to the diagnosis, the symptoms, and changes in the quality of life. ISN.

With Autoimmunity
Personal Stories


Fatigue in Scleroderma. Mild to extreme fatigue is a common symptom of scleroderma. Fatigue is not in your head. It is caused by physiological problems as well as psychological problems associated with the disease or other symptoms of the disease. ISN.

Video Overview
Sclero Complications and Fatigue
Personal Stories
Related Links

Fear of Progression

Individualized Intervention Programs Benefit SSc Patients. Since fear of disease progression and symptoms of depression are strongly associated, the researchers stated it is important to target both factors simultaneously with psychological interventions. Scleroderma News Today. (Also see Systemic Sclerosis: Prognosis and Mortality)

Marriage and Health

Marriage and Health. Support and counseling can be crucial for both the patient and their family members to understand and successfully deal with the many complex challenges of chronic illness. ISN.

Family and Health
Marriage and Health
Personal Stories

Needle Phobia

Needle Phobia. About 10% of people have a needle phobia, but there's no more need to suffer from the devastating effects of this disorder. ISN.

Medical Records
Famous People

Pain Management and Scleroderma

Pain Management. Many people with scleroderma suffer from chronic pain; therefore, in order to maintain an acceptable quality of life it is important to learn how to manage the pain. ISN.

Video Introduction
Pain and Relationships
Pain and Scleroderma
Exercise and Arthritis
Managing Pain
Pain Treatments
Pet Therapy
Research on Pain
Personal Stories

Quality of Life with Scleroderma

Quality of Life with Scleroderma. The quality of life (QOL) is affected any time something prevents you from maintaining your normal routine or from doing something that you enjoy. A broken arm will affect your QOL on a temporary basis, but a chronic illness may it affect it indefinitely. ISN.

QOL with Scleroderma
Personal Stories

Sexuality and Scleroderma

Sexuality and Scleroderma. Scleroderma can affect every aspect of sexuality, for both men and women. ISN.

Video Overview of Sexuality and Scleroderma
Erectile Dysfunction and Scleroderma
Female Sexual Dysfunction
Vaginal Dryness
Pregnancy and Scleroderma
Personal Stories
Sclero Forums Discussions

Sleep and Scleroderma

Sleep and Scleroderma. Poor sleep has been found to trigger inflammation and worsen pain. It can lead to depression and make it more difficult to cope with chronic illness. ISN.

Overview of Sleep and Scleroderma
Restless Leg Syndrome
Sleep and Illness
Sleep and Medications
Sleep Apnea
Personal Stories

Suicide Prevention

Suicide Prevention. If you or a loved one are even casually thinking about suicide, this is a medical emergency! Call your local emergency number (911 in the U.S.) or go to your local Emergency Room right away.

Overview of Suicide
Suicide Risk Factors
Suicide Warning Signs
Suicide Prevention
Personal Stories
Go to Anxiety and Attitude

Giving Assistant
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE button.


TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.

The most important thing in the world to know about scleroderma is!

Donate Now
Copyright 1998-2018, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.