About two years ago I went to a rheumatologist because I had some problems in my legs and hands. My legs would become really tense and my hands would turn purple without apparent reason. When I went to the doctor, he sent me to get a series of analysis to rule out lupus or other similar illnesses.
My great mistake was not taking these tests seriously. I got them done, but I didn't go back to the doctor since I was already feeling better and the pain and swelling had almost disappeared.
Yesterday, after two years I went back to the doctor, I told him I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite. He ordered a new set of analysis, but this time it is only to see how advanced my scleroderma is.
I am not scared by the illness in itself, however I am worried because the medicine for this illness in my country, Perú, are, unfortunately, only given to those people with insurance from the Peruvian state. I can no longer sign up for this health care system as the registry is completely closed, and so I cannot have the adequate treatment for my illness since, as I repeat, this medicine is only given to the Peruvian health care system and it is not sold in any pharmacy in my country.
Email: [email protected]
Story edited 04-25-08 JTD
Story posted 11-14-08 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Alana: Paciente Nuevo con Esclerodermia
Microstomia (Small Mouth)
Lung (Pulmonary) Involvement
Lung (Pulmonary) Stories
Skin Fibrosis Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: