Hello, my name is Ana Lucía. I am twenty years old and I was diagnosed with diffuse systemic scleroderma a year and a half ago. I have been on a treatment with corticosteroids and cyclophosphamide for roughly the same amount of time.
I have to go to the hospital every month for an IV treatment. Thank God everything is better now, it is under control. Perhaps, if it is God's wish, by the end of the year I won't have to do the IV treatment anymore, but I will have to keep on taking pills. But I want to tell everyone who has something similar that you shouldn't give up, you should go ahead, life is beautiful.
Thanks for listening.
Email: Withheld by request
Story edited 03-01-06 AL
Story prepared 03-01-06 JTD
Story posted 05-02-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Story Translator: Alba León
(Español/Spanish) Ana Lucia: Esclerosis Difusa
(Español) Esclerosis Sistemica Difusa
(English) Diffuse Scleroderma
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: