SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Ana Lucia: Diffuse Scleroderma

I want to tell everyone who has something similar that you shouldn't give up, you should go ahead, life is beautiful.

Yellow Canna by Sherrill Knaggs, ISN Artist

Hello, my name is Ana Lucía. I am twenty years old and I was diagnosed with diffuse systemic scleroderma a year and a half ago. I have been on a treatment with corticosteroids and cyclophosphamide for roughly the same amount of time.

I have to go to the hospital every month for an IV treatment. Thank God everything is better now, it is under control. Perhaps, if it is God's wish, by the end of the year I won't have to do the IV treatment anymore, but I will have to keep on taking pills. But I want to tell everyone who has something similar that you shouldn't give up, you should go ahead, life is beautiful.

Thanks for listening.

To Contact the Author

Ana Lucia
Email: Withheld by request
Story edited 03-01-06 AL
Story prepared 03-01-06 JTD
Story posted 05-02-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Story Translator: Alba León
LINKS
(Español/Spanish) Ana Lucia: Esclerosis Difusa

(Español) Esclerosis Sistemica Difusa

(English) Diffuse Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient
 

United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.

 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.