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Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient

Bye Bye GiaGia

Antiques Photo by Shelley EnszJust last February my grandmother who never seemed to get sick was brought to the hospital. I remember her constantly tired and her small body was always in pain. She suddenly could not walk. That was the beginning of a long fight with my dear grandmama.

We went everywhere to figure out what she had but no one knew. Traveling to a different hospital finally we heard scleroderma. Honestly I would never heard of this disease. I thought that she would get treatment and come back home. Though, little did I know, that my life as well as the rest of my family's would change forever.

She immediately had kidney and heart problems, and she was fed by a tube in her stomach. We all had hope, and the doctors assured us she would live but that it would be a hard life for her. I knew that she could never get back to the way she was, healthy.

Sad to say that my grandmother died nine months after they diagnosed her. My question is if she might have had this disease many years ago since she died so fast? Was this just the last stage? It progressed so fast. Are there many cases like this?

Thank you for listening.

Bye Bye GiaGia.

To Contact the Author

New email address needed 09-06-06 SLE
Old Email Prefix: GrkACE
Posted 10-24-99 SLE
Diffuse Scleroderma
Heart Involvement
Kidney Involvement
Survivor's Stories
Tubal Feeding
What is Scleroderma?
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