(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient

Just last February my grandmother who never seemed to get sick was brought to the hospital. I remember her constantly tired and her small body was always in pain. She suddenly could not walk. That was the beginning of a long fight with my dear grandmama.

We went everywhere to figure out what she had but no one knew. Traveling to a different hospital finally we heard scleroderma. Honestly I would never heard of this disease. I thought that she would get treatment and come back home. Though, little did I know, that my life as well as the rest of my family's would change forever.

She immediately had kidney and heart problems, and she was fed by a tube in her stomach. We all had hope, and the doctors assured us she would live but that it would be a hard life for her. I knew that she could never get back to the way she was, healthy.

Sad to say that my grandmother died nine months after they diagnosed her. My question is if she might have had this disease many years ago since she died so fast? Was this just the last stage? It progressed so fast. Are there many cases like this?

Thank you for listening.

Bye Bye GiaGia.

To Contact the Author

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.

We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

The most important thing in the world to know about scleroderma is sclero.org!