I am the mother of a six-year-old boy called Alex who is suffering from facial morphea scleroderma.
He has a large patch on the left side of his face under his chin which is slowly changing the shape of his face and jaw. He also has a patch in his hair above his left ear which has turned his hair white. He has a definite underdeveloped left side of his face which is more apparent when he is asleep.
He is currently on methotrexate weekly and has been in hospital twice for infusions of steroids.
He is a happy little boy who at the moment is not affected by his disease. I am not sure how he will feel when he is older.
Email: [email protected]
Story edited 06-15-07 JTD
Story posted 07-25-07 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
En Coup de Sabre
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Many thanks to our recent donors, Jack and Elizabeth Lewis, Network for Good, Shirley Miller, Reata Pharmaceuticals, and United Way of Snohomish County! See ISN News for more donors. Click Here to Donate.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: