I am seventy-two years old now and became ill with CREST syndrome when I was forty-six years old.
I fought this disease with every ounce of strength I had. I became a nurse when my children were older teens and my husband was a policeman.
Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder. While my rheumatologist tries to help, she said there is very little she can do and sometimes, I need pain medication.
I feel lost.This disease is hardly ever advertised as so little is known about it.
To those of you who suffer with it, you are not alone.
New email address needed 08-06-09 SLE
Old Email Prefix: iniof2
Story edited 01-16-09 JTD
Story posted 01-21-09 SLE
Story Artist: Ione Bridgman
Story Editor: Judith Thompson Devlin
CREST Syndrome Stories
Limited Scleroderma Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums *Online Support Group!*
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: