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Angela O: CREST

I am seventy-two years old now and became ill with CREST syndrome when I was forty-six years old.

I fought this disease with every ounce of strength I had. I became a nurse when my children were older teens and my husband was a policeman.

Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder. While my rheumatologist tries to help, she said there is very little she can do and sometimes, I need pain medication.

I feel lost.This disease is hardly ever advertised as so little is known about it.

To those of you who suffer with it, you are not alone.

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ISN Artist: Ione Bridgman

ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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