I am seventy-two years old now and became ill with CREST syndrome when I was forty-six years old.
I fought this disease with every ounce of strength I had. I became a nurse when my children were older teens and my husband was a policeman.
Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder. While my rheumatologist tries to help, she said there is very little she can do and sometimes, I need pain medication.
I feel lost.This disease is hardly ever advertised as so little is known about it.
To those of you who suffer with it, you are not alone.
New email address needed 08-06-09 SLE
Old Email Prefix: iniof2
Story edited 01-16-09 JTD
Story posted 01-21-09 SLE
Story Artist: Ione Bridgman
Story Editor: Judith Thompson Devlin
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ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
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