I have a sixteen-year-old daughter who was diagnosed with linear scleroderma twelve years ago. It began on her hip and spread to her lower limbs. Now she has a great deal of atrophy in one leg and foot.
She has gone through two surgeries to straighten toes and stretch the heel cord. She is an active teenager; she plays basketball and jogs occasionally.
However, she now deals with a great deal of pain when her leg goes into spasms. These usually occur in the evening while at rest, but may happen anytime and are quite painful.
We are in search of others who might share this problem and also some who may have solutions to help deal with the pain.
My daughter is now seventeen and in addition to her sport activities and schooling she maintains a waitress job.
She still has painful leg spasms but sometimes at bedtime she will take medicine for it, and that seems to help her to rest for the rest of the night, but even that takes a while to work.
I would like to offer a word of encouragement for others who share any painful disorder. Since my child has had this condition since the age of four, we have had several opportunities to pray over her. I can honestly say that even though her body is not whole, her spirituality certainly is.
In spite of all the physical and emotional pain that scleroderma has brought her, perhaps she is more whole because of it. Yet, as a mother who still witnesses her child in much physical pain, I am constantly seeking others to offer solutions that may help her.
Email: [email protected]
Story submitted 4-2-02
Story posted 4-20-02
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
We have the world's best supporters! See ISN News.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: