SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Anita G: Localized Scleroderma

I want to tell you that you are not alone.

Deep Pink Azalia by Sherrill Knaggs, ISN Artist Hello everyone, I am eighteen years old and unfortunately we were brought together by adversity.

Almost two years ago I was diagnosed with this illness, and they still haven't given me a specific diagnosis, which makes things very difficult since I ask for help and nobody is willing to help me. This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms.

At times I feel like my life is meaningless, I am overwhelmed with sadness, fear and solitude, even though I know I am not alone, my family and friends are with me.

I want to tell you that you are not alone, I understand what you are going through, and if you ever want to talk to somebody and share your experiences, you can count on me.

I wish you all that you keep on fighting, and that you keep the faith that together we'll find a solution. Hugs, and good luck in this struggle.

To Contact the Author

Anita G.
New email address needed 08-06-09 SLE
Old Email Prefix:aniguz_83
Story edited 11-23-07 JTD
Story posted 01-21-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Acerca de la Esclerodermia
Anita G: Esclerodermia Localizada
Juvenile Scleroderma
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Anna: Linear Scleroderm

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.