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Anita: Lichen Sclerosus et Atrophicus

My doctor has no idea what to do.

Deep Pink Dahlia by Sherrill Knaggs, ISN Artist I was diagnosed with Lichen Sclerosus et Atrophicus. I was treated with ultra potent steroid cream (Temovate) and an autoimmune suppressant ointment. Neither has made any difference with stopping the spread.

My concern is that it is spreading all over my body: both legs, my back, my neck and moving toward my face. It is in my underarms, my navel, my lower extremities. It is moving toward my hands, with some spots on one hand.

My doctor has no idea what to do, and feels that my case is very unusual as she had never heard of it spreading so much. The genital area is in remission, but it continues to spread on my skin. She says it is stress aggravated, but I do not know how to change my life and manage my stress. Help! I am going to try the Mayo Clinic.

To Contact the Author

Email: Withheld by request
Story edited 03-01-05
Story posted 03-11-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Lichen Sclerosus et Atrophicus
Skin Diseases Similar to Scleroderma

Lichen sclerosus is also known as lichen sclerosis or lichen sclerosus et atrophicus.

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Anita A: Sister of Systemic Scleroderma Patient

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