I started using Dovonex about six months after the disease was diagnosed, but unfortunately, there weren't any noticeable improvements. My doctor then suggested PUVA light therapy. However, in the area in which I was living at the time, there was no UVA-1 light, so the doctors created a protocol for just regular UVA light. Through a mistake in carrying out the treatment, the light caused second degree burns on my arm.
Now, six months later, I have tried to use Dovonex again, but the skin still can't tolerate it. Because of that, we are thinking about starting PUVA light therapy again and would like to know if anyone has tried this and has experienced any improvements. Thank you!
Email: [email protected]
Story posted 8-22-02
ISN Artist: Shelley Ensz
Story Editor: Judith Devlin
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.