SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
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Barb: Diffuse Systemic Scleroderma

Is there anyone out there going through the same thing?

Pink Bow I was diagnosed in 1985 with systemic scleroderma and Raynaud's disease.

It has affected the esophagus, fingers, toes and bowels, and recently I started having mini strokes.

I have recently gone on disability insurance. I am in the process of being tested for these strokes I am having, and I have to admit I am really scared. Is there anyone out there going through the same thing?

I could really use an understanding email buddy right now, so please feel free to write to me.

To Contact the Author

New Email: [email protected]
Story Posted 09-28-00
Story edited 07-17-03 SLE
Email comment added 07-17-03
New email added 11-03-04 SLE

Story Artist: Shelley Ensz
Bowel Involvement
Diffuse Scleroderma
Disability Resources
Esophagus Involvement
Types of Scleroderma
Go to Barbara H: Generalized Essential Telangiectasia

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)