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Bernarda: Mother of a Localized Morphea en Coup de Sabre Patient

Chile

Red Rose 3 for Bernarda by Sherrill Knaggs, ISN Artist My daughter suffers from this illness, she is only twelve years old. She was diagnosed in October 2006.

It was a terrible blow for me. She still is not fully conscious of what is happening, while I am devastated.

A month ago she started her treatment with folic acid and methotrexate.

It saddens me to see her desperation since her alopecia is becoming more and more pronounced.

I have a low income, since I work as a rural teacher, here in Chile. I really am desperate.

To Contact the Author

Bernarda
Email: [email protected]
Story edited 04-07-07 JTD
Story posted 04-10-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Español) Bernarda: Morfea Localizada-Golpe de Sabre
ENGLISH:
Caregiver Stories
En Coup de Sabre
Medical: Diseases and Symptoms
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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