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Birilla: CREST and Bilateral Thoracic Outlet Syndrome


For Birilla by Shelley Ensz It all began in 1998, I was thirty-two years old. Two of my fingers turned white. At first I didn't think much of it, but when I saw the problem continued I talked to my doctor, she told me it could be Raynaud's Phenomenon. So I took some tests that confirmed the diagnosis.

But the problems were only begining and I didn't know! After that I got diagnosed with bilateral thoracic outlet syndrome, and because of this I had to have surgery four times in six months. Afterwards, in 2000, I began to have vasodilator therapy at the hospital (flebo with alprostar). At first these therapies were done for 28 days; after a while they were for one week a month throughout the year.

A year and a half ago I began to feel a lot of pain in my right hip. After several exams I was diagnosed with a form of arthritis that set me back yet again. It affected my back and shoulders, ankles, and fingers. I have decided to have surgery again (in January), to try and solve at least part of Raynaud's. I will have two different stellectomies, and I hope to God it all turns out well.

To Contact the Author

Email: Withheld by request
Story submitted 12-22-05
Story edited 01-29-06 AL
Story prepared 01-29-06 JTD
Story posted 01-29-06 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
Story Translator: Alba León
CREST Syndrome
Raynaud's Stories
(Italiano) Raynaud's
(Italiano) Sclerodermia

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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