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Brenda F: Scleroderma and Cystic Fibrosis

It is hard to explain to my friends why I am absent from school a lot.

Apricot Hibiscus for Brenda F, by Sherrill Knaggs, ISN Artist My name is Brenda and I have had scleroderma and cystic fibrosis all of my life.

I am sixteen years old now and growing up with this disease has been a real struggle. Trying to hide it from my friends so I would not seem different has been hard. I try to live a normal life and keep active.

It is hard to explain to my friends why I am absent from school a lot. I usually give them reasons like I was not feeling good (usually I do not feel good) or that I woke up late, but really I miss school a lot because of my illness or because of my many appointments at Children's Hospital.

Lately I have been interested in researching it and found out I am not the only one. I wanted to tell my short summary life story for others to relate to and know that they are not alone.

To Contact the Author

Email: Withheld by request
Story posted 08-10-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Juvenile Scleroderma
PDF Brochure: What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Brenda K: Morphea Scleroderma

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