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Candy: My Mother Had Scleroderma

My mother died from scleroderma in October of 2001.

For a long time, she had difficulty finding a doctor who knew something about scleroderma. She was diagnosed with it in 1997. She had all the symptoms that go along with it. When we took her to the hospital, they gave her the breathing tests and then put her on a respirator. She died.

I wonder if the respirator was the best thing, since her lungs and organs were hardening. She was seventy-eight years old when she died.

She was a beautiful lady. Her children and my dad miss her very much.

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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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