My mother died from scleroderma in October of 2001.
For a long time, she had difficulty finding a doctor who knew something about scleroderma. She was diagnosed with it in 1997. She had all the symptoms that go along with it. When we took her to the hospital, they gave her the breathing tests and then put her on a respirator. She died.
I wonder if the respirator was the best thing, since her lungs and organs were hardening. She was seventy-eight years old when she died.
She was a beautiful lady. Her children and my dad miss her very much.
Email: Withheld by request
Story edited 12-16-04
Story posted 12-16-04 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Survivor's Stories (In Memory)
What is Scleroderma?
PDF Brochure: What is Scleroderma?
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: