My name is Cara and I was diagnosed with morphea when I was eighteen years old. I am now thirty-one.
My first spot was on my upper back and it has very slowly spread to my left arm, abdomen, left upper leg, and right lower leg.
Over the years, I struggled with my ugly skin. But I have come to accept it.
I once tried Potaba, but it made me so nauseated that I stopped, I also remember using some steroid cream, but it did not seem to help. So I basically just lived with it.
I fell in love with and married a wonderful man who loves me for me. We are now four months pregnant. Over the last six months, my right hand has become swollen and tight, and both of my knees are stiff and sore, and my latest spot is on the top of my left hand.
Until now, I had only seen a dermatologist, but I recently saw a rheumatologist who says it's limited or localized scleroderma. Because of the pregnancy, I can't start any treatment like Methotrexate, but I read a story about some homeopathic treatments. I would be open to that if anyone has any information.
Anyone is welcome to email me if they want. Thanks for listening.
Cara New email address needed. Old Email Prefix: Caravp Story posted 11-18-01 Email note posted 01-18-05 SLE Story Artist: Shelley Ensz |
LINKS Alternative Therapies Limited Scleroderma Morphea (Localized Scleroderma) Pregnancy and Scleroderma Types of Scleroderma This story is featured in the book Voices of Scleroderma Volume 2 |
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: