Truth is I was diagnosed about ten years ago. After multiple exams, many visits to different dermatologists and immunologists I was diagnosed with localized linear scleroderma.
This began when I was about twelve years old, with little spots on my right leg thigh. As time went by it disseminated throughout my leg and reached my foot. At that time (I am talking of about 1997) I was treated with methotrexate once a week and folic acid the rest of the week.
I was also told to exercise, but not to put pressure on my knee, which meant I could not do a lot of jumping: no jogging on hard surfaces, no basketball, mostly swimming and cycling so my muscles would not suffer more atrophy.
After two years the treatment ended and scleroderma did not advance to muscle or bone, but along the years I have found more spots on the same leg.
In spite of the initial diagnosis, I think that as time went by, linear scleroderma has turned into morphea, because the characteristics are more similar.
I would like to be in contact with other people in a similar situation so they can tell me which treatments they have followed, etc.
Email: [email protected]
Story edited 06-09-06 JTD
Story posted 09-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Carolina: Esclerodermia Lineal
Linear Scleroderma Stories
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: