SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Carolina: Linear Scleroderma

Truth is I was diagnosed about ten years ago.

Cherry Blossom by Sherrill Knaggs, ISN Artist Truth is I was diagnosed about ten years ago. After multiple exams, many visits to different dermatologists and immunologists I was diagnosed with localized linear scleroderma.

This began when I was about twelve years old, with little spots on my right leg thigh. As time went by it disseminated throughout my leg and reached my foot. At that time (I am talking of about 1997) I was treated with methotrexate once a week and folic acid the rest of the week.

I was also told to exercise, but not to put pressure on my knee, which meant I could not do a lot of jumping: no jogging on hard surfaces, no basketball, mostly swimming and cycling so my muscles would not suffer more atrophy.

After two years the treatment ended and scleroderma did not advance to muscle or bone, but along the years I have found more spots on the same leg.

In spite of the initial diagnosis, I think that as time went by, linear scleroderma has turned into morphea, because the characteristics are more similar.

I would like to be in contact with other people in a similar situation so they can tell me which treatments they have followed, etc.

To Contact the Author

Email: [email protected]
Story edited 06-09-06 JTD
Story posted 09-26-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Carolina: Esclerodermia Lineal

Linear Scleroderma
Linear Scleroderma Stories
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Caroline: Niece of Scleroderma Patient

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.