My story is a sad one. My aunt has had her scleroderma for nineteen years and now things are getting worse for her. She was in a hostel and now she is in St. George Hospital trying to get rid of a clot on the left side of her heart.
We are trying to get her into a nursing home, but they seem to think this is all in my aunt's head. But scleroderma is a disease that will not go away. I am her only next of kin as her sister is in a hostel too. Of course her sister is missing her, but we have to look for a nursing home.
What does it take for someone to help with our problems?
I am very sad that nothing can be done about this and I am getting worried about her. I do not think she will be coming to the hostel, but we will not know until they do more tests and I do not how much more testing that she can handle.
I hope this can be of some help to others. I will close now as it is sad.
Old Email Prefix: peteryuile
New email address needed 07-18-06 SLE
Story edited 10-21-05 JTD
Story posted 11-18-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Heart Involvement Stories
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: