SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Catherine C: Surviving Daughter of Pulmonary Fibrosis Patient

I cannot put into words how much it hurts.

Camellias by Sherrill Knaggs, ISN Artist My mum, Pauline, was diagnosed with chronic fibrosing alveolitis (CFA) in November 2004. After numerous visits to get second opinions, we were told that it was not CFA, but no-one could tell us exactly what it was.

Less than twelve months later, on September 8, 2005, my mum died in the hospital, after suffering a collapsed lung three weeks earlier. Mum did not smoke at any time in her life, and worked full time right up until she was admitted to the hospital.

I cannot put into words how much it hurts. I am thirty-two years of age, but I feel lost and vulnerable without my mum. The image of her dying in the hospital, knowing that she was dying, and telling us that she loved us and would always be with us, will haunt me forever.

On the outside, I am doing fine. I'm holding down a good job and looking after my dad and brothers, but inside I am screaming. I miss her so much and feel so sad all the time. I also feel that no one else understands. I have female friends who I thought would be able to empathize with me, but they are not able to give me the support that I would really benefit from. How can they not know how horrendous this is?

I would love to talk to other women who have lost their mums and just want to talk about their feelings. I am a good listener! Thank you for your time.

To Contact the Author

Catherine C.
New email address needed 11-15-06 SLE
Old Email Prefix:c.cochrane
Story edited 11-19-05 JTD
Story posted 11-23-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Chronic Fibrosing Alveolitis
Survivor Stories

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Catherine S: Surviving Daughter of Pulmonary Fibrosis Patient
 

United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.

 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.