I have had lichen sclerosus atrophy (LSA) for almost four years. It started with a splotchy rash on my underarms and stomach, slowly spreading and did not hurt so I did not see a doctor for awhile.
My family doctor was stumped. So I saw a dermatologist, which took six months as I was a new patient. A biopsy diagnosed LSA. She gave me little information. I then saw a new doctor who has treated me since.
I also developed it in my vaginal area and being fifty-six, I thought the thin skin and irritation was due to post menopause. I was treated for six weeks with medicines and have some scarring.
I have very hard skin on my armpits, front and back of my thighs, most anywhere I have folds of skin on my body. I use protopic and see my doctor every so often.
Three months ago, I came in contact with something that caused a flare up and I peeled like a burn victim. I have been in extreme pain. We have tried to eliminate many things as the cause, but all in all, I am in pain most of the time even with using creams for treatment. My skin is very hard and has no elasticity so sitting, laying, or riding in a car are uncomfortable.
Once this terrible outbreak is over my doctor is going to try light treatments on me. This is a pretty miserable way to live.
Thank you for listening, hope this helps someone else.
Email: Withheld by Request
Story edited 04-02-06 JTD
Story posted 06-09-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: