My facial expression changed a lot, but this went unnoticed to the people that do not know me very well. My friends say that I have gotten plastic surgery done.
The worst part are the lumps in my chest, some were so uncomfortable that I had to get them surgically removed.
The pain in my joints is strong, but manageable. I take medications, but what has really caused a trauma in me is the aesthetic part.
Email: [email protected]
Story edited 05-07-08 JTD
Story posted 01-21-09 SLE
Story Artist: Ione Bridgman
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Acerca de la Esclerodermia
Chela: Esclerodermia Difusa
Diffuse Scleroderma Stories
Skeletal Involvement Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: