My name is Christin. I am a twenty-year-old college student. I have had scleroderma for as long as I can remember. When I was two my mom noticed a strange spot on my right leg. They thought it was skin cancer. After a biopsy and many doctor visits it was revealed that I have linear scleroderma.
The spot on my right thigh grew and got deeper. Over the years more lesions began appearing on my knee, calf, and ankle as well. I was told that when I stopped growing that the disease would stop spreading, but it has not.
I think I have been extremely lucky so far as the disease has never hindered me physically. It was more a matter of appearance, and kids can be cruel when asking what is wrong with your leg! But I got used to that a long time ago.
The problem now is that in the past couple of years I have started to get cramps and pains in my thigh where the oldest spot is, and in the surrounding area. I have started seeing a rheumatologist again, and he started me on methotrexate, but he does not know what to do about the pain that I have in my thigh.
I cannot help but wonder if there is something I can do for myself like stretches or exercises. I am afraid of what will happen if I do not do something to help myself now and I am even more afraid that there is nothing that I can do to help myself.
Email: [email protected]
Story posted 12-03-03
Story Artist: Judy Tarro
Story Editor: Judith Devlin
Cancer and Scleroderma
What is scleroderma?
Judy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: