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Christin: Linear Scleroderma

I am afraid of what will happen if I do not do something to help myself now and I am even more afraid that there is nothing that I can do to help myself.

Trees by Judy Tarro, ISN Artist My name is Christin. I am a twenty-year-old college student. I have had scleroderma for as long as I can remember. When I was two my mom noticed a strange spot on my right leg. They thought it was skin cancer. After a biopsy and many doctor visits it was revealed that I have linear scleroderma.

The spot on my right thigh grew and got deeper. Over the years more lesions began appearing on my knee, calf, and ankle as well. I was told that when I stopped growing that the disease would stop spreading, but it has not.

I think I have been extremely lucky so far as the disease has never hindered me physically. It was more a matter of appearance, and kids can be cruel when asking what is wrong with your leg! But I got used to that a long time ago.

The problem now is that in the past couple of years I have started to get cramps and pains in my thigh where the oldest spot is, and in the surrounding area. I have started seeing a rheumatologist again, and he started me on methotrexate, but he does not know what to do about the pain that I have in my thigh.

I cannot help but wonder if there is something I can do for myself like stretches or exercises. I am afraid of what will happen if I do not do something to help myself now and I am even more afraid that there is nothing that I can do to help myself.

To Contact the Author

Email: [email protected]
Story posted 12-03-03

Story Artist: Judy Tarro
Story Editor: Judith Devlin
Cancer and Scleroderma
Linear Scleroderma
What is scleroderma?

ISN Artist: Judy Tarro

Judy TarroJudy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Christine: Morphea and Lichen Sclerosus et Atrophicus

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