Hi, my name is Christina and I am thirty-six years old. My story is about my struggle with every day life. I have two children, a boy age fifteen and a girl age ten. They are the main focus in my life, as well as James, my partner, whom I love very much.
My daily life is a strain on my family, but they never complain. Not once have they moaned to me about the changes we have had to make. My local doctor is very good to us in every possible way, but the main doctor that I see in the hospital every six months is hopeless. She thinks she knows all there is to know about me, but not once has she asked me if I was okay. She makes me feel like she just wants to let me know that she is the top doctor and I am a nothing.
In March of this year I went for my regular checkup and this time I saw a different doctor who listened to everything I had to say. After an hour or so she had to see her boss. After a while they both came back to see me and told me I had the onset of CREST. I was dumbfounded by that.
I never got to thank the young lady who went out of her way to see that I got sorted out. And I still have no real information except for what I have learned on the Internet.
Every day I struggle to cope with my body wanting to do its own thing and knowing that it cannot. It is a lot to take. But I am trying every day. I try but then I find something else I cannot do, but I am not giving up and I hope I never will. God bless you all.
New email address needed 08-06-09 SLE
Old Email Prefix: noonanchristina
Story edited 09-24-04
Story posted 09-28-04 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Raynaud's?
What is Scleroderma?
Many thanks to our recent donors, Jack and Elizabeth Lewis, Network for Good, Shirley Miller, Reata Pharmaceuticals, and United Way of Snohomish County! See ISN News for more donors. Click Here to Donate.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: