My name is Crystal and I am thirty years old. I have morphea. I was diagnosed with this when I was ten. It started on my stomach and then spread to my legs.
One day when I was at school I was called to the office and asked if my parents were abusive. This was the last time I wore shorts for a long time. I was mortified.
My mother took me to a skin specialist and all I remember was that this could spread all over and there is no cure. I left the doctor's office in tears. My mother then told me to stop my crying as I was not dying.
I realized over the years that my skin would get very itchy when the Morphea was active. I now have Morphea on my back, most of my legs and some on my arm. I felt like a freak growing up and I felt so alone. Morphea limited my social life as I would never allow anyone to see it unless they were close friends. I was unable to keep a relationship with a man as I could not bear being humiliated if my little secret got out.
It was not until I was twenty seven that I finally found someone who would not be pushed away, as he loved me. I thank god for him. We recently created a miracle, our son.
This is something I never thought I would ever have. I still am reluctant to wear shorts, but in time I hope that I will feel strong enough to deal with the ignorant people who have no idea how much a snicker, staring or rude questions can hurt someone's feelings.
Thank you for listening to my story.
New email address needed 09-26-06 SLE
Old Email Prefix: mrpcs12
Story posted 1-27-03
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.