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Crystal R: Morphea

I felt like a freak growing up and I felt so alone.

Bluebells Maidenhair by Sherrill Knaggs, ISN Artist My name is Crystal and I am thirty years old. I have morphea. I was diagnosed with this when I was ten. It started on my stomach and then spread to my legs.

One day when I was at school I was called to the office and asked if my parents were abusive. This was the last time I wore shorts for a long time. I was mortified.

My mother took me to a skin specialist and all I remember was that this could spread all over and there is no cure. I left the doctor's office in tears. My mother then told me to stop my crying as I was not dying.

I realized over the years that my skin would get very itchy when the Morphea was active. I now have Morphea on my back, most of my legs and some on my arm. I felt like a freak growing up and I felt so alone. Morphea limited my social life as I would never allow anyone to see it unless they were close friends. I was unable to keep a relationship with a man as I could not bear being humiliated if my little secret got out.

It was not until I was twenty seven that I finally found someone who would not be pushed away, as he loved me. I thank god for him. We recently created a miracle, our son.

This is something I never thought I would ever have. I still am reluctant to wear shorts, but in time I hope that I will feel strong enough to deal with the ignorant people who have no idea how much a snicker, staring or rude questions can hurt someone's feelings.

Thank you for listening to my story.

To Contact the Author

New email address needed 09-26-06 SLE
Old Email Prefix: mrpcs12
Story posted 1-27-03

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Morphea Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Cynthia: Diffuse Scleroderma

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)