Hi, my name is Crystal Pendley. I am from Purcell, Oklahoma. I am twenty-three years old, and I was recently diagnosed with morphea scleroderma, of the skin only.
I was devastated because my physician told me there was no cure. I decided to go to a dermatologist and see what I could do, and now I am getting treatments for it. I started with some creams and from there we are going to do phototherapy, PUVA, narrow bands.
This doctor has cured others with this disease, who have been left with little scarring. I am so glad and thankful for Dr. Paul Gillum. So there is hope for those out there with morphea.
It is a very misunderstood disease. There are so many different types. I have mine on my spine, oval shaped and looks like a bruise on the outer circle and has gotten large over the period of a year and a half. It started as the size of a pencil eraser and has grown to the size of a large orange, another spot has come up on the side of the other one, the size of a pencil eraser. I had biopsies taken off of both spots. So you really cannot see the little one.
I will update you on the progress of my visits. Thank you for listening and I hope and pray that everyone finds a treatment that works for you.
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Story posted 7-11-00
New email address needed 9-2-03
Story Artist: Shelley Ensz
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.