I was diagnosed with diffuse scleroderma three years ago and it was something I could not bear.
I did not know what was going on with me. My feet, hands and face swelled up and I went to several doctors and they did not know what was wrong. Finally, I was advised to see a specialist and he told me I had scleroderma.
I was so stressed out over having this disease that I could not eat. I lost weight and I lost my strength. I constantly fell or blacked out.
Now I am dealing with this disease very well. I take all my medicine, walk daily, do household chores that require lifting and other activities that prevent me from dwelling on my scleroderma.
I advise everyone with scleroderma or other diseases to keep your head up and never give up!
New email address needed 04-30-08 SLE
Old Email Prefix: cbailey
Story posted 07-14-04 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Brochure: What is Scleroderma?
We have the world's best supporters! See ISN News.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: