I have a lot of diagnoses, as you can see. I do have a question regarding CREST, if I may. And please, anyone who would like to chat, or has a response, also feel free to e-mail me.
When we are given the CREST diagnosis, does that mean that we definitely will have the tight skin eventually? I do not mean to sound ignorant, but I get so taken aback at times by all of the things that I have to deal with.
I am glad that I found this site, and I hope to offer support and some stories that will have common ground with everyone here. I appreciate all of your time, and thank you in advance. I wish everyone here nothing but good days, and positive outcomes.
New email address needed
Old Email Prefix: hopefloats-2
Story posted 7-24-01
Email note posted 01-24-05 SLE
Story Artist: Shelley Ensz
Systemic Lupus Erythematosus
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: