My mom is my best friend in the whole world. Three years ago she was diagnosed with scleroderma. Not only did she have to deal with the stress of that, her sister was diagnosed with CREST scleroderma ten years prior.
When we found out about my aunt we were very saddened. We all developed a very close bond over those years. She was taken from us May 15, 2004. She was a beautiful person.
I am not going to lie, I am very, very scared. But I know that will never compare to the fear my mom has. The only thing I can add is make every minute count with a family member that has this silent disease, make it precious. I know I will.
Email: [email protected]
Story edited 08-11-05 JTD
Story posted 08-11-05 SLE
Story Artist: Ione Bridgman
Story Editor: Judith Devlin
Causes of Scleroderma: Genetics
Scleroderma Family Registries
Types of Scleroderma
What is Scleroderma?
PDF Brochure: What is Scleroderma?
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.