I am deaf with scleroderma and I have had systemic scleroderma for ten years. I sign ASL (American Sign Language.)
I do not know if there are any others who are deaf with scleroderma, and I have not seen nor met anyone else who is deaf with scleroderma, even though I have been to several scleroderma conferences in the past years, including the 1999 conference in San Diego.
It is my hope and wish to meet others who are deaf with scleroderma. Is anyone else out there like me? May I hear from you real soon? Please email me. :-)
Thank you very much.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: